Planning for the Future: A Conversation With Karen Stauffer on Person-Centered Decision-Making
Karen Stauffer
Karen Stauffer, community
educator at Hospice & Community Care and a certified facilitator in advance
care planning through Respecting Choices, shares her personal journey and helps
demystify the process of making meaningful end-of-life decisions.
What
inspired you to start talking about end-of-life planning?
I learned all of this the
hard way. I come from a blended family—my parents were divorced and both
remarried. My mother was homebound for three years due to her health and didn’t
have any documents in place regarding her end-of-life wishes. The day my mother
passed away, she knew her illness had progressed and begged my stepfather not
to call the ambulance. In a state of panic, he called 911 and my mom was
intubated on a ventilator. She was conscious, but unable to speak. At the
hospital, I put a pen and paper in her hand and asked her what her wishes were,
and she wrote, “no machines.”
What did
you take away from that experience?
After that experience, we
learned about end-of-life planning and how important it was to have documents
in place. A few years later, when the time came, I was able to advocate for my
stepmother, sharing her wishes with her medical providers. I know firsthand how
much easier it is to advocate for someone when you are confident that you are
making the decisions that they would make for themselves. It takes the guessing
out of a stressful situation.
You prefer
the term “person-centered decision-making.” Why is that?
The term “advance care
planning” can perpetuate misconceptions. I refer to it as person-centered
decision-making to reflect a more positive type of process that goes along with
planning for major life events. We need to make this a topic that people want
to talk about and that is normalized.
What are some common misconceptions people have?
The biggest misconceptions I
often hear are that creating a plan is for people who are retired or have been
diagnosed with an illness, that it costs too much money to get a lawyer or that
their doctor never brought it up.
Who is person-centered decision-making for?
It’s for people 18 years old
and older. It allows someone to decide in advance what care they want to
receive if they become unable to speak for themselves. Rather than leave their
treatment options up to others, they are able to leave instructions that take
their values and preferences into account and eliminate the uncertainty for
their doctors and family members.
Does it
cost anything to create a plan?
A plan is free to create.
It’s a process—an ongoing plan that incorporates an individual’s medical
conditions, healthcare goals and hopes for care. Advance directives may include
a living will, medical power of attorney and/or financial power of attorney and
can be changed throughout the course of a lifetime.
How do you
know when it’s time to update your plan?
It’s important to keep in
mind the four D’s: every decade, a new diagnosis or decline in one’s health
status, a divorce or growing distance—geographic or relational.
How can
someone begin the planning process?
Think about your past experiences
with loved ones at end of life. How much advance planning had or hadn’t been
done for them, and what have you learned from those experiences? Identify
people you trust and who would feel comfortable communicating your wishes.
Learn about your options depending on health-related situations—like CPR,
breathing, nutrition and hydration. Once you’ve thought through your decisions,
document your wishes by completing a living will and choosing a healthcare
power of attorney. Lastly, discuss your wishes. Share documents with your
family or friends, healthcare power of attorney and medical providers so
everyone is on the same page and knows how to honor your goals and wishes.
For more information or to schedule
an educational program, contact Karen
Stauffer at 717-490-4074 or [email protected].






